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Hi, I’m Hetlena


I truly believe that we make our life the way we want it to be. If we believe that we are happy, we will be happy. If we believe we are having a good time, then so it is! I know firsthand that it’s not easy being human with our fallacies, doubts, and memories of mistakes made. We may not be able to change our past, but as the old saying goes, we can learn from it. I believe in living your best life, no matter what circumstances you encounter!

MY EXPERIENCES

We can thrive from our past because each experience makes us unique. Each experience allows us to learn something that we can pass down to someone else. I am resolute about the facts that if life is going to happen, make it happen happy!I believe in never giving up. Maybe that’s the Taurus in me or maybe that just comes from being the only girl growing up with six brothers. Whatever it may be, I do believe in never giving up.

  • Sometimes, you are overwhelmed with new symptoms, yet nothing seems to be working and you don't know what to do...
  • Sometimes, you want to be able to get back to living your life as normal as possible, but not sure how to...
  • Sometimes, you just feel lost...
  • Sometimes, you just need help with the changes a new diagnosis has brought into your life...

LUPUS EMPOWERMENT GUIDE

100%

PATIENT ADVOCACY

93%

PEER TRAINER AND MENTOR

80%

SUPPORT GROUPS

75%

I'm a Loser

I was confined to a wheel chair for a while, then walker, then a cane. I felt like I was walking dead. My friends avoided me and my mother declared I shouldn’t tell anyone about the name of this disease. I couldn’t do what my peers were doing.
October 7, 1993

I'm a Figther

I was able to graduate with honors and even obtained a few scholarships –all while on homebound my senior year! It wasn’t easy facing all the emptiness and feeling alone.
June 3, 1994

I'm a Mentor

I changed the way I looked at life while living with Lupus. I loved helping people and I was determined to get better so that I could continue to help others despite all the ridiculous setbacks lupus threw at me.
August 24, 2013

I'm not Dead Yet

I understand that life throws adversities. But we have to change our mindset to how we deal with those stumbling stones on our path through life. So I decided to write a book about my journey.
June 1, 2012

ADVOCACY

Take a look at a few of my advocacy activities